NPF's Parkinson's Outcomes Project

The National Parkinson Foundation recently released early findings from the largest clinical study of Parkinson’s ever conducted, showing that depression is the most important factor influencing the quality of life and health of Parkinson’s patients. The study, known as the Quality Improvement Initiative (QII) is collecting data from more than 5,000 people with Parkinson’s in four countries. QII is one part of the NPF’s broader Parkinson’s Outcomes Project to determine what works best in treatment and care with an aim toward slowing the impact of the disease.

To read more about NPF's Parkinson's Outcomes Project QII, click here. You may download the full report as a .pdf here.

 

Medical News

The Bright Side of Parkinson’s

February 21, 2015

Can Parkinson’s be slowed, stopped or even reversed? Can the disease be prevented before it starts, like polio and smallpox? More than at any time in history, success seems possible. Read more.

NPF on Health Connect South Podcast

February 18, 2015

This week we sat down with the President and CEO of National Parkinson Foundation, Joyce Oberdorf and Larry Kahn, CEO/Founder of PD Gladiators, a man who develoed early-onset Parkinson disease. Read more.

PAN Foundation Launches Financial Assistance for Patients Living with Parkinson’s Disease

February 19, 2015

The Patient Access Network (PAN) Foundation is proud to announce the launch of its newest financial assistance program, aimed at providing help and hope to patients being treated for Parkinson’s disease. The new fund will be one of nearly 60 disease-specific funds offered by PAN, spanning programs for cancer, chronic illnesses and rare diseases. Read more.

New growth factor indicates possible regenerative effects in Parkinson's disease

February 18, 2015

Researchers at Lund University and Karolinska Institutet have, in a first-in-man clinical study with twelve participating patients, applied a growth factor to the brain with the hope of preserving dopaminergic cells and fibers. Read more.

Workout: Reconnect With Your Body

February 17, 2015

Reconnect With Your Body brings dance to people with Parkinson's. The goal is to have fun, teach participants to listen to their bodies, discover new things about their movement and also get some exercise in an environment where other people understand what they're going through. Read more.

Quest for Parkinson’s cure opens door to genetic data mining

February 17, 2015

By analyzing the customers’ DNA, the Mountain View company has helped discover eight new mutant genes linked to the disease. Read more.

Parkinson’s hasn’t stopped McKinney woman’s fitness quest

February 16, 2015

While training for a marathon in 2009, Linda Swanson was diagnosed with Parkinson’s disease. Since then, she has walked 10 half-marathons, works out regularly and takes a weekly dance class for people with movement disorders. Read more.

Former Red Wing Brent Peterson to drop first puck at Griffins' Purple Community Game; here's why

February 13, 2015

Brent Peterson never experienced anything abnormal with his health during an 11-year NHL career, which began as a first-round pick of the Detroit Red Wings. Rather, it was in 2003, while an assistant coach with the Nashville Predators, when something strange happened. Read more.

National Parkinson Foundation Expands Expert Care Network

February 11, 2015

The Movement Disorder Center at UC San Diego Health System has been designated the 41st Center of Excellence in the National Parkinson Foundation’s (NPF) global network. Read more.

Breath Test for Parkinson's Disease

February 10, 2015

Experts believe that a simple breath test could help doctors detect and diagnose Parkinson's disease. Read more.

Creatine Doesn't Treat Parkinson's Disease, Study Says

February 10, 2015

Creatine doesn't appear to slow the progression of Parkinson's disease, a new study finds. Read more.

America Needs More Brain Disease Data

February 10, 2015

Last week, the anticipated first draft of the 21st Century Cures bill was released. The goal is ambitious but important – to accelerate the discovery, development, and delivery of promising new treatments and cures for people with devastating illnesses. Read more.

Researchers Identify Two mRNA Biomarkers for Parkinson's Disease

February 9, 2015

Through a meta-analysis of four microarray studies, a pair of researchers from the Rosalind Franklin University of Medicine and Science identified two mRNAs that appear to act as biomarkers for Parkinson's disease. Read more.

Fight Parkinson's: Exercise May Be The Best Therapy

February 2, 2015

Joel Hawksley for NPR... Mike Quaglia was 42 when he was diagnosed with Parkinson's disease, which gradually robs its victims of their ability to move normally. For the next seven years, his condition deteriorated despite medication. "I was at a point where I was either going to give up and let the Parkinson's take over, or I was going to decide to fight back," Quaglia says. Fight back he did — literally. Last February he stumbled on a program called Rock Steady Boxing. That's right: It teaches Parkinson's patients how to box. Read more.

AbbVie Announces U.S. FDA Approval of DUOPA for Parkinson's Treatment

January 12, 2015

"There is unmet need for treatment options for patients with advanced Parkinson's disease. As the disease advances, it can be difficult to control motor features," said C. Warren Olanow, M.D., Professor, Department of Neurology and Department of Neuroscience, Mount Sinai School of Medicine, and lead investigator of the DUOPA pivotal trial. "In clinical trials, DUOPA was shown to significantly reduce the amount of off time advanced Parkinson's disease patients experienced." Read more.

More Evidence Linking Gut Bacteria to Parkinson’s Disease: A Guide for Patients

January 5, 2015

Considerable evidence has been mounting supporting a relationship between the gastrointestinal system and Parkinson’s disease. Many pathologists and neurologists believe that Parkinson’s disease may start in the gut, however this view remains speculative. Additionally, there are many GI symptoms such as constipation that occur as prominent and disabling features of Parkinson’s disease. Read more.